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Cullin’s Story

At our tournament this year we will have a baby remembrance of babies that our foundation has helped, or that we have met along our journey of establishing and running the foundation.  We believe it is important to share their stories and say their names.

We are remembering Cullin today, his mommy, Ginny, has been helping others grieve through creative grief initiatives. Her organization Scared Sidless helps to support bereaved families.  Every time she posts a creative grief saying it gives me a moment to reflect and I am sure it does for others. This is Cullin’s story…. 

Cullin Darden Limer

March 28, 2012- October 1, 2012

“Cullin was such a special baby, he said “I love you” without words.  Cullin died from SIDS on October 1, 2012.  Cullin is deeply missed by all his family and especially by his brothers and sisters. I wonder what he would be like today as a seven year old boy.  Emotionally, we were a mess after we lost Cullin.  We went to The Warm Place numerous times and all of us liked the punching bag room the most. Our family also channels our pain into passion by helping others.  Financially, if it weren’t for the help of others, we would not have had a proper burial, casket or headstone for Cullin. Generous donations allowed me to miss work for a few weeks, but without their financial support, it wouldn’t have been impossible. 

I think the Rhett Sullivan Foundation can help families when financial help is needed the most.  When you lose a child, the last thing you want to worry about is the expense of it all.” 

~Cullin’s Mommy


Johnny’s Story

At our tournament this year we will have a baby remembrance of babies that our foundation has helped, or that we have met along our journey of establishing and running the foundation.  We believe it is important to share their stories and say their names.

Today we are remembering Johnny.  I met Johnny’s Mommy, Erin, through Hope Mommies. She is so sweet to share her experiences after losing Johnny to help others of loss. Erin has also donated her time and talent of designing all our signage for the golf tournament! This is Johnny’s story….

John David Browning V

July 22 2016 – July 24, 2016

“I was 30 weeks pregnant and had just been diagnosed with gestational diabetes. The doctor had asked that I start coming in weekly. On my 1st weekly appointment, the doctor sent me to the hospital for observation as she noticed Johnny’s heart was having some deceleration. I went to the hospital and my husband and daughter met me there. I was set to be there all weekend so I sent my husband and daughter home. I settled in, ate some dinner, and tried to get some rest. In the middle of the night, they came and said they had to take the baby immediately because his heart rate had dropped. So, all alone and scared, I was put under so they could save my baby’s life. He had to be resuscitated immediately after delivery and placed in the NICU to treat Hydrops Fetalis (fluid that was threatening to collapse his underdeveloped organs), where I was told he would stay until his due date. For 2 days, more issues developed. He had a hole in his heart and down syndrome. All efforts to remove the fluid and help him thrive were exhausted and they decided that he would not survive being transported to a higher level NICU. Finally, they told us that any more efforts would just cause more damage to his brain and most likely leave him with no quality of life. We made the painful decision to take him off life support and hold him for the first time as he drew his last breaths.

We missed out on a full life with our son and many milestones that we’ll never experience.  I handle my grief by remembering he is no longer struggling or in pain and is with Jesus in his perfect body. I look to the hope that I will see my son again in Heaven and get to spend eternity with him and our Savior.  I feel like I have been parenting Johnny’s older sister through a veil of fear and sadness that she does not deserve. Emotionally, my husband and I have struggled, but our faith has brought us through the fog.  Financially we were fortunate that my husband has a great job, so while it was expensive, we did not struggle too much financially.

I think the Rhett Sullivan foundation is an amazing support for families that are already struggling emotionally and shouldn’t have to think about how they will afford the funeral expenses plus being able to give their baby a proper memorial/funeral is so important.”

~Johnny’s Mommy

Talia’s Story

At our tournament this year we will have a baby remembrance of babies that our foundation has helped, or that we have met along our journey of establishing and running the foundation.  We believe it is important to share their stories and say their names.

We are remembering the precious Talia today.  I felt an instant connection with Talia’s Mommy, Chelsea, when I met her.  She shared her journey of being a mom to her other children after loss and the many ideas she has to honor Talia with her talents.  She is also donating her time and talent to take pictures at the Rhett Sullivan Foundation Golf Tournament. We thank you and looking forward to having you at the tournament.  This is Talia’s story….

Talia Joy Schwartz

June 4, 2019

Talia was our 6th baby. We were all so very excited, as she would be the first girl after 3 boys for us, and the first girl grandchild after 5 boys for the family. I was closely monitored since I had been diagnosed with a subchorionic hematoma, which caused bleeding; but ultimately resolved by week 20. I had the genetic testing and weekly ultrasounds, including visits with the maternal fetal medical doctor. I had no reason to suspect anything was wrong. I had a busy weekend and had felt a bit off. I just assumed I was getting ready for labor, as my last two babies had been born early. I thought she was pretty still that day, but again, I thought labor was imminent. It struck me in the kitchen, that I hadn’t felt definite kicks for at least a day. I drank something and laid on my side. I tried the fetal doppler. I rolled over to get up and I felt her body weight shift and realized that what I thought were braxton hicks were just the tightening around her shifting body. My family had gone to the pool, so when my husband got home, I told him I hadn’t felt Talia in a while. He tried to find her on the doppler also and found nothing. I called my best friend and she offered to take me, so my husband would have the van for our kids. We went in. Two ultrasounds confirmed that her heart was no longer beating.

I miss everything about Talia. There will never be a holiday or a milestone that is not touched with a tinge of grief for what might have been.  To handle my grief I worship and pray.  Emotionally it is devastating and financially our budget has been tight ever since. 

The Rhett Sullivan Foundation is such a beautiful thing, and so needed.

~Talia’s Mommy



Jude’s Story

At our tournament this year we will have a baby remembrance of babies that our foundation has helped, or that we have met along our journey of establishing and running the foundation.  We believe it is important to share their stories and say their names.

Today we remember the handsome Jude.  I found the Jude Zayac Foundation, which was established in Jude’s name, when I was researching SIDS.  Their mission is to raise funds to support SIDS research and to enrich the lives of living children in our community.  Jude is missed daily however his foundation lead by Jude’s Mommy, Theo Zayac is doing great things. This is Jude’s story….

Jude Theodore Zayac

April 19, 2014 – July 23, 2014

“Jude was the biggest of all my babies, born weighing 9lbs 6oz. He was the sweetest, most content little baby from his first second on earth.  Jude stopped breathing during the first hour of his third day at daycare. A licensed daycare that we love and trust to this day. I was just going back to my second week at work after maternity leave and Jude was going to daycare two days a week.   I was talking about Jude when I got the call from the daycare telling me that Jude wasn’t breathing and had been taken in an ambulance. Once I got the ER in the fog of my own deafening screams, I somehow noticed a chair placed behind me in the middle of the emergency room hallway and I knew what they were going to tell me wasn’t good news. I was able to watch my baby be worked on, with lines in both of his calves and nothing on the heart rate monitor when the ER doctor stopped pushing breaths.  They removed all his tubes and lines so I could hold him while he died. Most days that experience still doesn’t feel real.

I miss his happy smile. I miss the way he would look at his big brother and crack a smile. I miss the quiet mornings, just he and I, when he’d wake before everyone else. I have three living children and what I am missing out on most is the feeling of having a complete family. Every milestone with my kids or big event with our family just isn’t quite right. There is a lot of joy but there is so much sadness.

I make a choice to walk with my grief and let it overcome me some days.  I made a choice the day Jude died that I would never let guilt, blame or anger seep in. Sometimes they do, and I fight them off, but carrying grief is heavy enough. I have an incredible husband, incredible kids that grieve their brother openly along with me, and an incredible extended family.

Emotionally, since Jude’s death I  have had to deal with anxiety, major depression and PTSD. I often find it difficult to focus which makes day to day life tougher. There is definitely a heightened sense of anxiety regarding our living children.  Fortunately, I can’t say that there was really any impact on our family financially as a direct result of Jude’s death.  But if we didn’t have enough money to pay for his burial expenses and medical bills, things would look a lot different.

The list of needs that families who have lost a child is seemingly endless and always changing and the Rhett Sullivan Foundation can help with these.” 

~Jude’s Mommy



Angel’s Story

At our tournament this year we will have a baby remembrance of babies that our foundation has helped, or that we have met along our journey of establishing and running the foundation.  We believe it is important to share their stories and say their names.  
We are remembering Angel today.  I met Angel’s Mommy, Christi Moreno, through Hope Mommies.  She is the currently Hope Mommies Dallas Chapter President. I want to thank her for her advice, wisdom and her ability to share her heart with me.  This is Angel’s story…

Angel Moreno

September 13, 2016

“On September 13, 2016, we went for our 20 week sonogram, to find out the gender of our 4th baby.     My husband and I have three daughters, so we were desperately hoping for a boy this time.  Instead of finding out the gender, we heard those four terrible words, ‘There is no heartbeat’, and my heart broke in two.  We left the office and went home and told our daughters, the baby they also wanted so badly was not going to be coming home, and my heart broke even more.  I remember going to bed that night knowing our lives had been changed forever.  On the 15th, we delivered the son we had hoped for, but not the way we had hoped to.  Angel was still born due to cord issues.  The pain of saying hello and good-bye to our son in the span of a few hours was crushing.  We buried our son three days later, next to my grandmother in a cemetery where five generations of my family are buried.     

We really miss having a son and seeing what he would have loved doing and what his personality would have been and watching our daughters get the opportunity to be big sisters to their baby brother.  To handle my grief, I focus on the hope we have knowing we will see our son again one day in Heaven and the blessings our journey through loss have brought into our life.

Emotionally the loss of Angel still affects us.  Our daughters still miss their baby brother and speak about him often.  It has brought us closer together.  Financially we incurred medical debt and debt for burial expenses, even with some financial assistance from our family.

What the Rhett Sullivan Foundation is doing is amazing and so needed.  Not having to worry about the finances and the cost and being able to honor your baby in the way your heart longs to, after having to say goodbye is an amazing gift.  We were fortunate to have help from our family, so we could do what we felt was best for our family, but without help we would have had to make decisions based on money and not what we wanted.”

~Angel’s Mommy